The Weekend Leader - People afraid of taking part in vital clinical research

People afraid of taking part in vital clinical research

London

16-March-2020

 Fear is a major factor behind people's reluctance to take part in clinical research, such as trials to test new medicines and treatments, a global review has found.

The review, led by researchers at the University of York and Hull York Medical School, found that fear about testing new treatments and possible side effects was the most common reason given by patients for not wanting to participate.

Clinical trials are an essential part of developing new medicines and improving healthcare, but recruiting patients to take part is one of the biggest challenges researchers face.

"Our review highlights how people are held back from taking part in research by their fears surrounding losing control of the treatments they receive and worries about possible side effects," said Dr Peter Knapp from the Department of Health Sciences at the University of York and the Hull York Medical School,

The researchers looked at the results of more than 400 studies from around the world on the reasons behind recruitment to health and medical studies.

Concerns about privacy and confidentiality have also increased over the past decade, the study suggested.

"Lack of trust was also identified as a common barrier for minority ethic patients around the world - perhaps a legacy of major historical violations of ethical standards in cases like the Tuskegee syphilis experiment," said Knapp.

The study found that, on the other hand, trust in doctors and clinical staff, a desire to help others, and the potential for improvements in their own health, were key factors that motivated patients to get on board with research.

Knapp added: "Interestingly, we found quite a few gaps between the main reasons people gave for their reluctance to take part and the interventions currently in place in healthcare systems like the NHS to try to remove barriers to participation.

"There is a need for more research to identify effective recruitment strategies that draw on psychological theory and the facilitators and barriers identified in this overview".

The authors of the study are calling for the development of new schemes to increase participation in research, which address patient anxieties and motivations. IANS



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